December 5, 2023
Navigating the Uncharted: A Journey Through the Labyrinth of Rare Diseases with Sarah Marshall, MSW, Peer Co-Chair UDN
In our enlightening conversation with Sarah Marshall, MSW, Peer Co-Chair of the Undiagnosed Diseases Network…
October 5, 2023
Uniting for Rare Disease Advocacy: Reflections from Attendees
The Rare Advocacy Summit, hosted by Global Genes, recently brought together a diverse group of…
November 17, 2022
A ‘Map’ for Rare Disease Caregivers from One of Their Own
Meet Mary-Ella Majetich. She’s the mother to a son with a rare disease and a…
