Start Your Journey
Next Peer Support Group
For Providers & Professionals
Give an Hour was awarded the Rare Belonging Grant from the Alexion Charitable Foundation to aid Give an Hour in mapping the journey of rare caregivers in relation to their mental health and wellbeing.
Rare diseases or conditions are those that affect fewer than 200,000 people. It is estimated that 25 to 30 million Americans currently have a rare disease or condition. Rare disease has a broad and lasting impact on caregivers, in both daily life and long-term mental health and well-being. Give an Hour is partnering to uncovering innovative ways to provide rare caregivers with accessible and understandable resources to support them on their journey.
and the Global Genes Allies in Rare Disease
Self-compassion is simply giving the same kindness to ourselves that we would give to others.