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Identifying key mental health and emotional wellness touchpoints along the Hypoxic-Ischemic Encephalopathy caregiving journey
Give an Hour was awarded the Rare Belonging Grant from the Alexion Charitable Foundation to aid Give an Hour in mapping the journey of rare caregivers in relation to their mental health and wellbeing.
Give an Hour addresses the unmet and/or disconnected mental health and emotional wellbeing needs of the rare disease caregiver community by listening, educating and providing services. The grant spans over one year with a completion of deliverables by December 2022.
Founded in 2005, Give an Hour is a national nonprofit that specializes in mental health, emotional wellness, and has taken the steps to join the area of rare caregiving. Through peer support and provider training GAH will help build a sustainable support system for rare caregivers. This program will be offered nationwide, where trained providers and peers are located.
To find out if local support is offered in your area please contact firstname.lastname@example.org.
The following NO COST services are available:
The opportunity for those serving the rare caregiver community to collaborate in how to best serve the unique needs of this population
An online mental health and emotional wellness resource library
Ongoing Peer Support: Initially, peer support will be available online using a web– based platform. Face–to–face support will be offered based on peer support availability/comfort level
An Evidence Based Peer Support Model that will provide training to rare caregivers who are interested in becoming a peer supporter in the project
Referrals for mental health services
To ensure that the services offered meet rare caregiver needs, we need to hear from you! Take 5 minutes to access our online needs assessment.
Self-compassion is simply giving the same kindness to ourselves that we would give to others.