Rare Disease Community Archives - Give an Hour

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February 29, 2024

Shedding Light on Rare Diseases: Amplifying Voices of Diversity and Resilience

Today, February 29th, is Rare Disease Day. This day reminds us that it is imperative…

Communications Team

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December 5, 2023

Navigating the Uncharted: A Journey Through the Labyrinth of Rare Diseases with Sarah Marshall, MSW, Peer Co-Chair UDN

In our enlightening conversation with Sarah Marshall, MSW, Peer Co-Chair of the Undiagnosed Diseases Network…

Ryan Young

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global genes rare advocacy conference

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October 5, 2023

Uniting for Rare Disease Advocacy: Reflections from Attendees

The Rare Advocacy Summit, hosted by Global Genes, recently brought together a diverse group of…

Rebekah Wilbur

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