Rare Disease Caregivers Archives - Page 3 of 4

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October 27, 2025

When IPV survivor and facilitator Aliza Nichols began her healing journey, she discovered that support…

Ryan Young

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October 7, 2025

Compassion fatigue among rare disease caregivers is not a theoretical risk; it is a documented…

Ryan Young

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February 29, 2024

Today, February 29th, is Rare Disease Day. This day reminds us that it is imperative…

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December 5, 2023

In our enlightening conversation with Sarah Marshall, MSW, Peer Co-Chair of the Undiagnosed Diseases Network…

Ryan Young

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October 5, 2023

The Rare Advocacy Summit, hosted by Global Genes, recently brought together a diverse group of…

Rebekah Wilbur

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Rare Disease Caregivers