November 17, 2022
A ‘Map’ for Rare Disease Caregivers from One of Their Own
Meet Mary-Ella Majetich. She’s the mother to a son with a rare disease and a…
September 24, 2022
Journey of a Rare Disease Caregiver: Mapping is Key
The definition of a rare disease is a disease or condition that affects less than…
May 7, 2022
Children Have Mental Health Too
Children are really just little people who deserve our respect and understanding – not at…
March 22, 2022
A Caregiver’s Journey: One Voice Speaking for Many
Providing Healing, Promoting Hope is the theme for Women’s History Month 2022. To honor the…
